Hybrid Associate Director of Patient Services presso National Organization for Rare Disorders

About NORD and Patient Services

The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. We offer a competitive compensation and benefits package along with a collaborative remote work atmosphere and opportunities for career growth. Learn more at www.rarediseases.org.

NORD’s patient assistance programs help patients obtain lifesaving or life-sustaining treatments and medical services they could not otherwise afford. These programs provide financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Position Summary

The Associate Director of Patient Services is responsible for operational management of NORD’s patient services department, contributing to program development and leading implementation, administration, and analysis of daily operations. 

In the absence of Vice President, Patient Services, the Associate Director is the senior department leadership.

Essential Duties and Responsibilities

•  Lead and maintain departmental infrastructure systems, serving as the primary liaison with Finance and IT to ensure seamless integration, functionality, and data flow; regularly assess and enhance infrastructure to improve efficiency and support evolving departmental needs.
• Provide oversight and first review of department expenses and bills, preparing for VP review and signature.
• Serve as primary leadership contact for Clinical Trial sponsors and Undiagnosed Diseases Network partners.
• Administer and troubleshoot the Communication Center (Five9) and RareCare system.
• Generate and analyze department reports on KPIs, monthly reports to donors and sponsors.
• Primary responsibility for managing the operational aspects of Patient Services including managing staff and establishing and meeting benchmarks for KPIs.
• Monitor agreements and contracts for compliance and adherence.
• Collaborate with Finance on analysis and reconciliation of pledges, donations, and program funds.
• Provide statistical, financial, and operational data to support departmental decision-making.
• Provide leadership and mentorship to managers overseeing daily program workflow.
• Responsible for oversight of Financial Dashboard including analysis tracking and reporting of program fund health.
• Serves as the Department’s subject matter expert, trainer, and troubleshooter for RareCare®; and Five9 Communication Center; partners with IT team for system functionality, enhancements and business rules.
• Works collaboratively with Vice President in the development, implementation, and administration of programs and department budget.
• Monitors agreements and contracts for compliance and adherence. 
• Ensure that department SOP’s and program specific SOPs are current and comply with NORD policies and procedures, OIG guidelines, sponsor expectations and contractual agreements.
• Performs other duties and functions as assigned. 

Education/Experience

• Bachelor’s degree and minimum 7 years of related experience required.
• A minimum of 5 years of experience in a customer service management role with a focus on motivating, training and creating a culture of accountability.
• Experience implementing and continuously improving processes and systems. 
• Experience in a call center environment is preferred.

Knowledge, Skills and Abilities

• Excellent verbal, written and interpersonal communication skills; able to adapt to and engage diverse audiences.
• Strong mentoring and coaching experience for a team with diverse levels of expertise.
• Superior organizational and time management ability; capable problem solver.
• Excellent project management skills.
• Excellent data analysis and reporting skills.
• Conflict resolution skills.
• Advanced knowledge of Microsoft Office, including advanced excel, is essential.

Key Competencies for Success

• Mission Focus- a professional can-do attitude with a commitment to uphold the mission and core values of the organization.
• Employee Management- establishes and fosters direction, alignment, and commitment.
• Effective Communicator - demonstrates emotional intelligence and effectively communicates, verbally and in writing.
• Project Management- effectively analyzes problems, considers solutions, negotiates obstacles, develops plan, adheres to timelines, implements plan, evaluates implementation course, and adjusts accordingly. 
• Manages Change- uses effective strategies to facilitate departmental change initiatives and overcome resistance to change.
• Financial Management- understands Patient Services business operations and financials.
• Technology Proficiency- embraces and promotes the use of technology to work efficiently & effectively.

Working Conditions

This position may be hybrid or fully remote based out of Danbury, CT. Occasional travel may be required.

 Essential functions are typically performed in an office setting with a low level of noise.  Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions. 

NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran or disability status.

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