Hybrid Lived Experience Expert Lived Experience Expert with verification
Great Ormond Street Hospital Charity · nan, · Hybrid
About the job
Application Deadline: 29 October 2024
Department: Impact & Charitable Programmes
Location: Great Ormond Street Hospital Children's Charity
Description
The Charity has recently developed a new Patient and Family Experience Funding Strategy, and a key value at the heart of this is to increase the role of patient and family voice in strategic and funding decisions. To help us do this, GOSH Charity is looking to recruit 5-6 lived experience experts - ideally ex-patients and/or family members or carers with experience of NHS paediatric healthcare. These individuals will use their lived experience to help ensure everything we fund has the greatest possible impact for the children of GOSH. People who have experience of being a patient or a patient's family member or carer are experts by experience. We want to empower those with lived experience through meaningful engagement in discussions around quality, service, system improvement and design to help us give seriously ill children the best chance, and the best childhood, possible.
You can find out more about our funding for patient and family experience on our website at https://www.gosh.org/what-we-do/child-and-family-support/
What To Expect
Meetings will mostly be held virtually. If you are required to attend a meeting in person, this will be held in our London offices, opposite Russell Square Tube station. You will be given notice well in advance and the Charity will cover all associated travel costs and support you in arranging these.
Essential
What we are looking for
If you are interested in joining our network of lived experience experts and contributing to the work GOSH Charity does, please apply here by 29th October.
Once the application deadline has passed, we will review your responses to the questions against the points listed in the 'What we are looking for' section above. Applicants who meet these criteria will be invited to for an informal chat with members of the team, providing an opportunity to ask questions about the role and for us to get know you better.
If you have any questions, please contact [email protected]
What's in it for you?
We Recognise The Value Of Lived Experience And The Importance Of Involving It In Shaping The Charity's Work. We Also Acknowledge The Barriers That Prevent Individuals Giving Their Time For Free. In Recognition Of This, We Would Like To Offer An Optional Payment As a Token Of Appreciation And Compensation For An Individual's Expert Advice And Guidance. The Remuneration Rates Are As Follows
You are required to notify HM Revenue and Customs (HMRC) of fees received only if your annual income exceeds your personal income tax allowance at the end of the financial year (5th April). Any honoraria paid to you for your involvement with GOSH Charity are therefore subject to tax and National Insurance depending on your personal income status. The payments are not taxed at source by GOSH Charity; meaning you are responsible for calculating whether you need to pay tax or National Insurance. GOSH Charity staff cannot provide individual tax or National Insurance contribution advice. If in any doubt, please contact your local HMRC Office, information about which is available here.
This Role Will Also Enable You To
Department: Impact & Charitable Programmes
Location: Great Ormond Street Hospital Children's Charity
Description
The Charity has recently developed a new Patient and Family Experience Funding Strategy, and a key value at the heart of this is to increase the role of patient and family voice in strategic and funding decisions. To help us do this, GOSH Charity is looking to recruit 5-6 lived experience experts - ideally ex-patients and/or family members or carers with experience of NHS paediatric healthcare. These individuals will use their lived experience to help ensure everything we fund has the greatest possible impact for the children of GOSH. People who have experience of being a patient or a patient's family member or carer are experts by experience. We want to empower those with lived experience through meaningful engagement in discussions around quality, service, system improvement and design to help us give seriously ill children the best chance, and the best childhood, possible.
You can find out more about our funding for patient and family experience on our website at https://www.gosh.org/what-we-do/child-and-family-support/
What To Expect
- You will be part of our network of lived experience experts for up to 12 months in the first instance.
- Two to three times a year, you will review grant applications by drawing on your lived experience of paediatric healthcare and scoring them based on provided criteria.
- We anticipate up to 4 hours of your time will be required for reviewing applications for each funding round (2-3 rounds per year), depending on the number of applications received.
- You will be invited to a meeting to share your thoughts on the applications with other representatives from across the sector.
Meetings will mostly be held virtually. If you are required to attend a meeting in person, this will be held in our London offices, opposite Russell Square Tube station. You will be given notice well in advance and the Charity will cover all associated travel costs and support you in arranging these.
Essential
What we are looking for
- At least 18 years of age at the time of application.
- Must be based in the UK.
- Access to a laptop/tablet/phone and internet connection.
- Previous lived experience with GOSH or other UK paediatric healthcare settings (either first-hand as a patient, or as a sibling, parent or carer looking after a loved one).
- An interest in paediatric healthcare, especially in relation to patient and family experience.
- Confidence and clarity voicing opinions within group discussions.
- Degree of flexibility and willingness to commit for the full duration of this role.
- Experience of engagement with a charity.
- Confidence with written communication.
- A medical, scientific or healthcare background.
- Any current knowledge of GOSH Charity or the work we do.
If you are interested in joining our network of lived experience experts and contributing to the work GOSH Charity does, please apply here by 29th October.
Once the application deadline has passed, we will review your responses to the questions against the points listed in the 'What we are looking for' section above. Applicants who meet these criteria will be invited to for an informal chat with members of the team, providing an opportunity to ask questions about the role and for us to get know you better.
If you have any questions, please contact [email protected]
What's in it for you?
We Recognise The Value Of Lived Experience And The Importance Of Involving It In Shaping The Charity's Work. We Also Acknowledge The Barriers That Prevent Individuals Giving Their Time For Free. In Recognition Of This, We Would Like To Offer An Optional Payment As a Token Of Appreciation And Compensation For An Individual's Expert Advice And Guidance. The Remuneration Rates Are As Follows
- £12.50 for involvement in a task or activity which equates to less than 30 minutes.
- £25 up to 2 hours involvement
- £50 up to 4 hours involvement
- £100 up to 8 hours (full day) involvement
You are required to notify HM Revenue and Customs (HMRC) of fees received only if your annual income exceeds your personal income tax allowance at the end of the financial year (5th April). Any honoraria paid to you for your involvement with GOSH Charity are therefore subject to tax and National Insurance depending on your personal income status. The payments are not taxed at source by GOSH Charity; meaning you are responsible for calculating whether you need to pay tax or National Insurance. GOSH Charity staff cannot provide individual tax or National Insurance contribution advice. If in any doubt, please contact your local HMRC Office, information about which is available here.
This Role Will Also Enable You To
- Be involved with our enthusiastic Charity team, meet new people, and become more involved in the child health community.
- Play a pivotal role in helping to improve patient and family experience at GOSH, helping us give seriously ill children the best chance, and the best childhood possible.
- Use and develop your skills, while gaining valuable experience that will contribute to your personal and professional growth.
- An induction session to provide you with additional information on GOSH Charity, the various patient and family experience funding streams we support, and the scope of your role.
- A key contact who will be available to answer any questions you may have and support you during your role.
- Clear communication about application review timelines and meetings, and the prompt provision of materials that support these processes to allow plenty of time to prepare.
- Flexibility when setting meeting dates and times to suit your availability.
- A flexible and understanding relationship with the Charity.
- A safe and open environment for you to provide feedback on your experience in this role.
- Feedback from the Charity on how your contributions have helped us to improve the lives of seriously ill children.
- A walkthrough of what you will be asked to do when reviewing funding applications with time for Q&A.
- Signposting to resources to help you understand how to avoid bias when reviewing applications.
